Comments on: Living With a Special Needs Child

By: fred

fred — Wed, 07 Oct 2009 17:52:59 +0000

what up man the boy looking good man he look ilke he ok good be wot yo boy man

By: Adventures In Babywearing

Adventures In Babywearing — Tue, 04 Aug 2009 22:44:18 +0000

I just typed out a comment here but then my phone died so excuse me if it posts twice!

My Noah was on the ketogenic diet for 2.5 years and it was our miracle. He is 8 now and has been seizure-free almost 5 years now. I can hardly believe it. He’s been off the diet almost 3 years and is doing great.

I still have the play-doh birthday cake we made for him, saved in a Tupperware container- as a matter of fact I was just looking at it yesterday thinking about how far we’ve come. He blew out his candle in that cake and then we served keto Popsicles and his special cream as ice cream with flavorings and food coloring.

He is doing wonderfully- I hope the same for your Noah!

Stephanie Precourt

By: Stephanie

Stephanie — Tue, 04 Aug 2009 05:31:21 +0000

Hi Cathy! Thanks so much for sharing your story.

Have you read Steph’s blog, by chance? It’s called “Adventures in Babywearing” and she has four young children – three boys and a baby girl. One of her boys was also diagnosed with epilepsy (at age two). Ironically, his name is Noah too. You can check out her hopeful and inspiring story here: http://www.adventuresinbabywearing.com/2006/05/full-story.html.

By: Crescent Moon

Crescent Moon — Mon, 03 Aug 2009 12:42:01 +0000

Thank you for sharing the information about your son’s special diet. I was unaware that such a thing existed. My eight year old son takes Trileptol to control his seizures and we were told that he would have to be medicated for the rest of his life. I’m definitely going to read your blog and research this further.

By: Kelly

Kelly — Sun, 02 Aug 2009 03:43:52 +0000

Cathy, this is truly an inspirational story to all parents who have a children with epilepsy! I was diagnosed with epilepsy at 15 and having supportive, proactive parents made such a difference in the course of my treatments. I only had 3 seizures in ten years. I am a 31 year old mother to 2 healthy girls and feel so blessed. Stay strong…what you are doing for Noah is wonderful. Thank you for sharing.

By: Fawn

Fawn — Fri, 31 Jul 2009 20:16:15 +0000

Hi Cathy! I had no idea you two were related — I’ve been following both your blogs for quite a while. Makes and Takes is such a great source of projects for my 3.5 year old keto kid.

Blessings to you both.

By: Joy

Joy — Fri, 31 Jul 2009 18:31:55 +0000

My niece is 30 and has two children she deals with a seizure
disorder and working too. Your little one is in my thoughts and prayers.

By: Amy McK

Amy McK — Fri, 31 Jul 2009 02:33:17 +0000

Wow! Thank you Cath for sharing your experience. I am so amazed with your family, and so blessed to have you in my life experience. You are touching many people. I am amazed by the comments, to see how many you have touch here and probably more who have not commented. Thanks Marie and Cathy!!!! Love you both!!!

By: Marie

Marie — Fri, 31 Jul 2009 01:17:34 +0000

What lovely comments from everyone. Thanks to all of you for sharing your thoughts. I’m so glad Cathy’s been able to share this post, reaching out to so many who are in similar situations.

By: MommaDJane

MommaDJane — Fri, 31 Jul 2009 01:00:14 +0000

Thanks for sharing your sister’s story with us. I have a special needs daughter as well and she has Epilepsy caused from a stroke she suffered during utero. In November of ‘07 she had a hemispherectomy which was the removal of her left side of the brain. Her seizures had become so severe we were unable to control them. Although the surgery helped her seizures have not completely stopped.

I plan to visit your sister’s blog next. I love finding new bloggers.